Sammy Basso, the World’s Longest-Living Progeria Survivor, Dies at 28
Sammy Basso, the longest-living person diagnosed with the rare genetic disease progeria, has passed away at the age of 28, according to a statement from the Italian Progeria Association. Basso was diagnosed with progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS), at just two years old. The disease causes rapid aging, with most individuals affected by it having a life expectancy of 13.5 years without treatment.
1. A Remarkable Life Amidst Rare Genetic Condition
Born in Schio, Italy, in 1995, Basso made significant strides in raising awareness of progeria. Together with his parents, he founded the Italian Progeria Association in 2005 to support those affected by the disease. He gained international recognition through the National Geographic documentary Sammy’s Journey, which chronicled his travels along Route 66 with his family and best friend.
2. The Global Fight Against Progeria
Progeria affects approximately one in eight million people, with only 130 documented cases worldwide. The Italian Progeria Association, however, estimates that the number may be higher, particularly in developing countries where diagnoses are more challenging. Despite the limited number of cases, Basso became a global advocate for the condition, using his platform to inspire others.
3. Legacy and Impact
The Italian Progeria Association paid tribute to Basso, writing on Instagram, “Today our light, our guide, has gone out. Thank you, Sammy, for making us part of this wonderful life.” Basso’s life and advocacy have left a lasting impact on the fight against progeria and the awareness of rare diseases globally.
Sammy Basso’s extraordinary journey will continue to inspire many, as his life was a testament to resilience, hope, and the power of community.
Source: Swifteradio
