Eddie Vedder’s upcoming documentary, Matter of Time, is more than just a concert film; it’s a call to action. Set to debut at the Tribeca Film Festival this summer, the film chronicles Vedder’s efforts to raise awareness and funds for clinical research into Epidermolysis Bullosa (EB), a rare genetic skin disease that causes painful blisters and skin erosion, primarily affecting children.
The documentary captures Vedder’s 2023 solo concerts in Seattle, where proceeds were directed to the EB Research Partnership (EBRP), a foundation co-founded by Vedder and his wife, Jill, to find a cure for EB by 2030. The film blends powerful live music performances with real-life stories from patients, families, researchers, and thought leaders working towards a cure.
“We are so grateful to the music community and the entire team who made these concerts and this film possible,” said Eddie Vedder, emphasizing that the film is about hope, resilience, and the power of community. Jill Vedder, chairwoman of EBRP, noted that the organization’s work is reaching more people than ever, underscoring the urgency to cure EB by 2030.
The Vedders’ personal connection to EB comes through a family friend’s son who was born with the disease, motivating them to take action. The documentary showcases how their concert efforts amplified the voices of the EB community and inspired real change.
Founded in 2010, EBRP has made significant strides in EB research through a venture philanthropy model that funds clinical trials and accelerates research. The foundation has supported 160 research projects, with over 50 clinical trials currently in progress, a sharp increase from just two when it was founded.
Michael Hund, CEO of EBRP, highlighted that Matter of Time showcases the tangible scientific progress made in EB research and hopes to expand this model to other rare diseases.
Produced by Door Knocker Media and the Vitalogy Foundation, the documentary will premiere on June 12 at the 24th Tribeca Film Festival.
Source: Swifteradio.com
